THE Order of St John launched its Award for Organ Donation at St
James's Palace last month. This is a new way for the country to
thank anyone who has had some part to play in saving lives in this
way: people who think beyond themselves, and say "Yes."
Among the first recipients were some who had selflessly given an
organ to a loved one, and the relatives of people whose organs had
been given to anonymous strangers after their death. I was there as
the parent of one such donor.
To someone with heart, kidney, or liver failure, a new organ is
a gift of life. That is clear enough. But for the family of a
donor, the opportunity to offer such gifts can be a life-giving
gift of a different sort. Six years ago, my son, James, died after
a car crash. Within minutes of his death, his kidneys and heart
valves were removed for transplantation.
The previous four days had been hellish, as all our hopes for
recovery gradually ebbed away. A meeting was scheduled, and I was
sent home to rest: the meeting would centre on the withdrawal of
life-support. "God give us grace to accept with serenity the things
that cannot be changed": James was going to die.
My stepmother had called my husband, urging him to "warn me"
that I might be approached about organ donation. This was a
kindness, a defensive gesture that was meant to prepare me for
something that could be painful.
It turned out to be more: as I heard the words "organ donation"
in that darkness, a light was turned on. Something positive could
be done with this tragic situation. I was given "courage to change
the things which should be changed".
Organ donation turned out to be part of a process of accept-ance
that allowed me to give my precious son back to the God who had
given him to me 23 years earlier. The sense of his life as a gift,
received and returned with gratitude, has been incredibly important
for me.
Organ donation allowed his death to seem not as if he had been
taken from me, but rather as if I had given him. In the morning,
two strangers would be waking up to new lives that they had hardly
dared to hope for.
Life and death are closely connected, and I was reminded in
those days of T. S. Eliot's poem "Journey of the Magi", where he
says that death and birth seem to be different, but are in fact
connected; they are alike.
FAMILIES of organ donors do not usually know who receives the
organs of their loved ones, and often do not receive personal
thanks. Yet many speak of the importance of the sense of gift that
they feel, having been able to bestow something so precious on
complete strangers. For me, there was a sense of being able to
invest new hope in the recipients, when all hopes and aspirations
for James had gone.
The Welsh Assembly has recently voted to introduce an opt-out
system for consent to organ donation, starting in 2015. Currently,
as in England, potential donors can register themselves, and, in
the event of their death, their family is approached for
permission. In some circumstances families of people who are not
registered are also approached to make a decision on their
behalf.
With a great shortage of organs for transplantation, an
"opt-out" scheme would seem to be a logical move in England. In
2008, however, an Organ Donation Taskforce report found that
recipients "stressed their need to know that organs had been freely
given". Similarly, families "were concerned that an opt- out system
might undermine the principles of Organ Donation as a gift".
Equally troubling, if a family in Wales cannot cope with the
idea that their loved one's organs will be used, "the law will
allow family members to provide information to show the deceased
person would not have wished to consent."
It is easy to imagine the sense of violation that they might
feel if they cannot provide evidence; although I suspect that if
the family objected, no surgeon would go ahead. None of that would
do anything to further the cause of organ donation.
MANY recipients of organs find it hard to accept that someone
had to die in order that they might live. I spoke with one woman
recently who was weighed down with guilt after her liver
transplant. When I reassured her that donors and their families can
also feel a profound sense of gift and hope from the donation, the
woman said that she now felt that she could get on with her life. I
have heard similar reactions over and over again.
The emotional well-being of recipients, therefore, cautions us
to hope that an organ was not only freely given, but that the donor
gained some sort of benefit. If the Government decides to debate
the possibility of an opt-out system, these are voices that it
should listen to. Change the dynamics of gift, and the prospects
for organ donation will not necessarily improve in the way we all
want.
The Church hits the headlines with wranglings over women
bishops, gay marriage, and anything to do with sex, but there is
more to a human body than sex or gender. Sex is not the only way we
make a gift of our bodies.
The Church's credibility would benefit if Christians were seen
to be concerned with this - a less alluring, but profoundly
meaningful sense of donation. And the Christian stress on life as a
God-given gift has profound repercussions for the law around organ
donation, and opting in and opting out.
Petra Shakeshaft is an ordinand at Westcott House,
Cambridge.